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Janet 08-28-2010 07:41 PM

That's great news Paula. He will feel so much better without all that fluid. We have to keep a close eye on Mom's weight and blood pressure so we know what size fluid to use. Once he gets the hang of it....it won't be so bad.

gja1000 08-28-2010 07:52 PM

I'm so glad to hear that he is doing better! You all must be so relieved!

JJJ 08-30-2010 12:18 PM

Glad to hear everything is coming along fine :)

paula1961 09-07-2010 03:28 PM

Dad got to go home from the hospital on Sat. He had dialysis that day at the hospital before he was sent home.
I came home on Sat. He had to be back in Lexington to the dialysis clinic this morning. He did well. He seems to be gaining some strength back too..which is wonderful.
His cath for paritineal(sp?) didn't leak...so his dialysis will be done at home tonight for the first time. My brother is there and I will be going back tomorrow. I usually go on Wed and stay till Fri or Sat.

lynne b 09-07-2010 05:23 PM

thats such good news, so glad he got to come home finally and praying that he continues to get stronger each day!!
I hope you are taking care of yourself Paula, it gets pretty exhausting trying to care for our parents. how far do you have to travel to get to your dads?
Get some rest please!!

gja1000 09-07-2010 07:14 PM

I'm so glad that he is home now. I hope the peritoneal dialysis goes well, it is so much easier than hemodialysis. I hope you mom is doing OK!

Janet 09-08-2010 07:12 AM

So glad your dad is home and starting the peritoneal at home. He will like that sooo much better. Mom is really doing good now, I hope the same for your dad.

judy 09-09-2010 06:46 PM

I am so happy for your Dad Paula! It is so much better to be home, and this type of dialysis sounds like it is much easier on him.

Janet, I am glad your Mom is doing well also. Now,if you can only get her license taken away!

JJJ 09-10-2010 09:00 AM

:bighug: So happy to hear his home :bighug:

DianaB 09-11-2010 08:47 AM

It sounds like your Dad's doing well. I'm so glad that he's back home!!!!

paula1961 09-11-2010 01:16 PM

Thank you all so much!! He seems to be doing pretty good. The only bad thing is that he is not getting enough fluid off at night and they have been having to go the dialysis clinic so that the nurse can get more off during the day. But starting today he has to have 2 hand exchanges done throughout the day. Hopefully everything will be straighened out soon and they won't have to deal with that everyday.
I got home last night. I had been there since Wed. and will be going back this coming Wed. All in all though he is doing much much better!:)

Janet 09-11-2010 03:46 PM

That is so good to hear that he is doing better. Once they get the fluid off and get him on a steady dialysis he should do great and feel so much better.

JJJ 09-12-2010 11:11 AM

I know he hates going in to dialysis but I'm sure his grateful his being taken care off. I think you need to rest and put your mind at ease now that everything seems to be turning out so good.

Janet 09-19-2010 07:04 AM

How is your Dad now Paula? Has he started the dialysis at home yet? How is he getting along? It's not hard at all once they get the hang of it. Do you know what company he is using for supplies and his machine? My Mom uses Baxter. I hope he does as well on it as Mom is doing.

paula1961 09-19-2010 11:40 AM

Thanks for asking Janet. He is still hanging in there. Yes he is doing the dialysis at home now. His heart is just so weak that they are having a hard time getting it all adjusted. They have to do at least 2 hand exchanges a day in addition to the cycler at night. But he is doing a little better. He sometimes even feels good enough to walk without his walker from the kitchen to the living room. That's really good for him.

He also uses Baxter for his supplies. Wow.....it's alot of stuff isn't it? But who cares as long as it's helping keep him with us.:) I am so glad that your Mom is doing well.:)

Janet 09-19-2010 03:43 PM

I'm glad he is able to walk farther...that's something at least! Also using the different fluids will help take fluid off too. Mom does have to watch her weight and if her ankles are bigger and use the fluid accordingly. She does really well. I'm glad your Dad is doing well too. As time goes on and they get him where he should be....he'll feel much better.

gja1000 09-19-2010 05:38 PM

I'm so glad to hear that he is home and doing better. I know you are relieved! I hope he continues to get stronger.

paula1961 09-24-2010 12:44 PM

Thank you all so much! Dad is still doing pretty fair. Please continue to keep he and my Mom in your prayers.

Janet 10-07-2010 06:51 AM

How's your Dad Paula? Is he getting use to the home dialysis? It does take some time, but then it's just like everything else...ya get use to it.

Mom does really well now and she's very cautious about sanitation so she doesn't get another infection....it can be really painful.

paula1961 10-11-2010 05:22 AM

Dad is back in the hospital. His dr took him off of mexalatine because it was causing a terrible rash. That med was working with his defibilator. Well long story short......Thurs night, he got shocked 10 times before the ambulance could get him to the hospital. He stayed in icu until day before yesterday. Now he is on the intermediate care floor. He is stable but not out of the woods.

Girls, I am facing the reality that I may not have my wonderful Dad much longer. He has been having these problems for so many years. But since July, it has gotten a hundred times worse than usual. We have been told and have known in our hearts that he is in the last stages of heart and kidney failure. He is an awesome Dad! It will break my heart to let him go, but I can't stand to see him suffer anymore! He said last night that if he couldn't walk or get a glass of water that he wanted to go be with Jesus! Talk about the tears flowing! Please say prayers for him and my Mom! She will be lost without him. They have been married 53 years. This is sooo sad!

Janet 10-11-2010 06:26 AM

Oh Paula....I'm so sorry for what you are going through. I was a Daddy's girl and lost him 36 years ago....still hurts as if it was a few days ago. I will keep him in my prayers and you and your mother also. Wish I could give you a hug.

Blueyes 10-11-2010 08:23 AM

I'm so sorry. It's hard to wait for something awful to happen. My prayers are with you all. I hope he has an easy time of it.

judy 10-11-2010 06:52 PM

Oh Paula, I am so sorry for all of you. This is so hard, and I will keep you, your Dad and your Mom in my heart. I wish there was something I could do for you
besides sending you love.

paula1961 10-16-2010 12:28 PM

Thank you all so very much for your kind words. You are all so sweet and kind. He is still in the hospital. He is in icu. He's talking about telling the heart drs to turn off his icd. I don't know if he will or not but us kids and Mom have decided it is his choice, he is the one having to suffer through all of this. He's feeling the physical and emotional pain of it all. We are only feeling the emotional part and that is heartbreaking!
I am going back tomorrow or Monday. I just came home yesterday for a couple of days.

gja1000 10-16-2010 07:36 PM

This is so hard Paula. You all are right though, it is his choice. I am so glad that he is able to state his wishes. It is so hard when we have to make decisions for our loved ones. I know it is so hard. He has been through a lot of pain and emotions. He must be very tired and very brave to withstand all of this. Drive safely tomorrow. I hope you all can find some peace.

lynne b 10-17-2010 04:00 AM

Paula, I am so sorry to hear that your dad is not doing well again. I will be praying for all of you.

Janet 10-17-2010 04:42 AM

Paula, it makes my heart ache knowing what you are going through. Wish we all lived closer so we could be there in person for each other. Prayers are continuing for you and your family.

DianaB 10-17-2010 05:03 PM

Paula, I know that this is hard for all of you.......not just your Dad. It's not easy to see them in pain and dealing with so much. You, your Dad, and family are all in my prayers!!!

paula1961 10-17-2010 08:35 PM

Okay here's what is happening. He decided to have everything turned off. They tried to do dialysis night before last and could not get any fluid off of him. Last night he refused dialysis. Today he has taken no meds except for pain meds. He has two drips..one to keep his blood pressure up and one to help keep his heart in rhythm. Tonight they are weaning him off of those, he has enough to last 5 or 6 more hours. Today he had medtronics to come in and turn off his defibralator..the part that shocks you, the pace maker is still on.

All of our immediate family were there today. My sister and I are staying a block from the hospital..so we came over here to rest for a few hours. Mom is at the hospital, they brought her a recliner.

Thank you all so much for your kind words and prayers. I feel the love from reading your words. I love this forum and my wonderful friends here. I will keep you posted as to what is happening. It is in God's hands now. At least I know where my Dad will be spending eternity and that in itself means the world to me. But I will miss him so badly!

gja1000 10-18-2010 05:21 PM

I read your post on FB - I'm so sorry your family is having to go through this. It sounds like your dad was in control of things to the very end. He is very brave. I know you are so sad right now, I can't imagine what it must feel like. I hope your family can find peace and comfort knowing he is no longer having to fight and suffer.

DianaB 10-18-2010 08:47 PM

I'm sorry, Paula. There is so much peace that comes in knowing that your Dad was ready for heaven and was looking forward to being there. Even though it's hard right now that thought will warm your heart so many times in the future.......and he's there just waiting for the rest of his family to join him. The part that hurts is that we can't just call them up and have a chat or run over and see them.

God is good and I know that He'll be with you and your family in the days ahead giving you comfort and what ever you need. I'm here if you need me....otherwise I'll be praying for all of you. Hugs!!

judy 10-19-2010 07:00 AM

He sounds like he was such a courageous man Paula. He was ready to go to heaven. He will be watching over all of you, but it is so hard when you can't speak to him or see him for a long time.

I am so sorry for that loss Paula. I still speak to my Dad,, and I still miss him, but I do know that he will be at the gates of Heaven to meet me when I get there. We're never separated from our loved ones forever.

Blueyes 10-19-2010 11:59 AM

I hope this week passes quickly for you Paula. There will be so many memories and emotions... Rest when you can, and don't forget to eat, even if you aren't hungry. My prayers are with you all!

Gina 10-19-2010 05:04 PM

Oh Paula.. You and your family are in my prayers. Your father was a very brave man up to the end, and the way you spoke of him a loving husband , father, grandfather and a believer in God.. He sure was a wonderful person. God bless him and God bless you all through this hard time... My deepest condolonces...

JJJ 10-20-2010 06:58 AM

Paula I'm sorry your going through hard times. I lost my grandma a few years ago and I was actually relieved and happy she was leaving behind so much pain and suffering.

You're Dad is smart and wants to go in peace without the side effects of all the meds. I'm sure his grateful that his family is respecting his decision.

XOXOXOXOXOOXOXOXOXOXOXOXOXOXOXOXOOXOXOXOXOOXOXOXOX OXOOXOX

Janet 10-20-2010 08:42 AM

My heart is breaking for you Paula...I've been through it too. Your Dad sounds like a very couragous man in so many ways. He had control of his life to the very end. Know that you're in my thoughts and prayers dear friend.

paula1961 10-21-2010 07:17 PM

Thank you so much Janet!


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