My Mother took my SSI money for herself

[teri88]

Originally Posted by Sassysmama

Im sorry to hear about your niece. Fortunately, things have improved with fighting CF. I have to do 4 aerosol meds 2x a day along with a vest I wear that kinda shakes me up to get the mucus out. Im doing good though. You pretty much have to been your own doctor in this situation.

I'm so glad you are doing well! I actually met the man who invented that vest! When Lisa was a baby we used to have to literally turn her in all different directions and "pound" on her with a cupped hand. Then her grandfather (my sil's dad) came up with this huge rubber suction cup looking thing that was attached to a thing that would move it up and down and we used that. I was very close to Lisa and the only other person, besides her parents, who knew how to do her treatments. When she was born the outlook for CF was so dismal and now I just saw something the other day that called it a "potentially" fatal disease. It is wonderful to see the advances that have been made. Now we just need to wait for them to come up with a cure.I pray that you continue to have good health.

[judy]

My cousin's son has CF, and he's doing very well. He's finished with college now, and a real sweetheart. I'm not close with my cousin, but last time I saw them, he was feeling very good.

My grandson was tested for it also, but it was negative, thank goodness.

With stem cell research, there could be a cure!

[teri88]

Yes, let's pray for a cure! My neice and my cousin's son both passed away from CF.